A criança com Síndrome Joubert na escola comum : um estudo exploratório
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Data
2020-12-15
Autores
Santos, Yasmin Rocha dos
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Universidade Federal do Espírito Santo
Resumo
This research named The child with Joubert Syndrome in the common school: an exploratory study has the central objective of investigating the Joubert Syndrome (SJ) in its genotypic, phenotypic and bibliographic aspects together with reports of people who live the daily life of a child with this syndrome. Specifically, we sought to: to know and describe through the bibliography and interviews the main characteristics, peculiarities and particularities of the subject with Joubert Syndrome and to analyze the scientific production on the subject in an inclusive perspective; theoretically reflect, from the previous objectives, on pedagogical practices designed for the learning and development process. As he understands that all subjects are capable of learning and developing regardless of their physical, mental or sensory characteristics, it was decided to assume the historical-social perspective. In order to achieve the proposed objectives, this qualitative dissertation leaned on the perspective of the exploratory study and carried out a bibliographic survey on the subject, for the production of data, documentary and bibliographic analysis and semi-structured interviews were used. As a result, we identified that SJ is rare and was first described in 1969, with 1 in every 100,000 live births. From the analyzes already investigated, it was possible to notice that even today, there are few studies that explore SJ. Until the end of this research, no other works were found, from Brazil, that address this theme, in addition, most of the researches found in the health area, therefore, we realized that there is a need for more works on this theme in the educational scope for that education professionals can offer education that meets the educational needs of these students and provide an inclusive and quality education. Regarding the student's schooling process with SJ, it was possible to verify that the professionals who work with this student see her as a socio-historical subject and plan activities that aim to promote learning and development during the student's period in the school unit , the progress in the development of the student was notorious, which proves the theory advocated by Vigotski that disability is not an impediment in the learning and development process of students with disabilities
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Síndrome de Joubert , Inclusão , Ensino Fundamental , Joubert syndrome , Inclusion , Elementary School